Useful Links
The Epilepsy Therapy Project is an American organization that exists to overcome the barriers to successful translation of promising new research insights and to make new therapies a reality for patients. They provide financial support and and scientific and business direction to promising new therapies, and invest in programs and platforms that can take time and costs out of new therapy development.
Founded in 2008 by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. Every year on March 26th, people from around the globe are asked to wear purple or lavender and spread the word about epilepsy.
Talkaboutit.org was founded by television star Greg Grunberg (Felicity, NBC's Heroes) in collaboration with the Epilepsy Foundation of America. It unites Hollywood stars to engage people to talk more about epilepsy in order to end the stigma. Greg Grunberg's young son, Jake, has epilepsy. Want to watch and hear stars like John Mayer and Jennifer Garner talk about epilepsy? Check out this site.
Providing quality info and support on seizures.
Epilepsy Ontario is a registered charitable non-profit non-governmental health organization dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders in Ontario by promoting information, awareness, support and referral services, advocacy, education and research.
Epilepsy Canada is the only national non-profit organization whose mission is to enhance the quality of life for persons affected by epilepsy through rpomotion and support of research and facillitation of education and awareness intiatives that build understanding and acceptance of epilepsy. One of their key goals is to fund the best epilepsy research in Canada (those looking to make a donation support epilepsy research in Canada should consider this organization as the recipient).
The Canadian Epilepsy Alliance (CEA) is a Canada wide network and partnership of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.
The Canadian League Against Epilepsy (CLAE) is an organization of medical and basic science professionals whose mission is to enable Canadians affected by epilepsy to live a life that is not limited by their condition. Their goal is to develop, through research, innovative therapeutic and preventative strategies to avoid the consequences of epilepsy. The also seek to promote national awareness and education about epilepsy and its consequences with the help of the Canadian Epilepsy Alliance.
Canadian Epilepsy Research Initiative (CERI) was organized in 2001 by a group of basic scientists and clinicians across Canada, as a research section of the Canadian League against Epilepsy (CLAE). The purpose of CERI is to organize and connect epilepsy researchers across Canada into an organization which can promote epilepsy research to the Canadian Institutes for Health Research, lay funding organizations, industry, and to the general public in order to improve diagnostic, treatment and prevention of epilepsy.
The Epilepsy Foundation of America is a national voluntary agency solely dedicated to the welfare of the more than 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country.
Citizens United for Research in Epilepsy (CURE) is an American nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease. Founded by Susan Axelrod, who together with her husband, David Axelrod (Senoir Advisor to President Barack Obama), have a daughter with epilepsy.
The International League Against Epilepsy (ILAE) is the world's preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy. Its mission is to provide the highest quality of care and well-being for those afflicted with the condition and other related seizure disorders.
The International Bureau for Epilepsy (IBE) was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness. The Bureau also works in close liaison with the International League against Epilepsy (ILAE), an organisation of medical professionals involved in the medical and scientific issues of epilepsy. IBE is funded mainly by membership dues from its chapters and by financial support from other contributors.
Lions Foundation of Canada provides dog guides to Canadians with disabilities. Trained to assist individuals with epilepsy, Seizure Response Dog Guides are capable of activating an alert system or barking for help in the event of a seizure. Their ability to respond and react quickly makes them a trustworthy companion, and providers their handlers with the confidence to live independently. Identified by their bright yellow harnesses, Seizure Response Dog Guides allow clients a greater feeling of safety and independence.